How Can I Get the Best Multiple Myeloma Care No Matter Where I Live?

Free Webinar July 29 @ 11:00 am - 11:45 am PDT

Diverse Partners in Your Myeloma Care is brought to you by The Patient Empowerment Network. It is produced by Diverse Health Hub. We thank Janssen, Takeda, Genentech, AbbVie and Bristol-Myers Squibb for their support.

Register to learn about:

  • How myeloma patients can get the best care no matter where they live

  • Where to access actionable and meaningful myeloma educational resources

  • How to avoid roadblocks to care; for example, the cost of treatment

  • Important questions for your support team, and how to ask them

  • Empowerment tools for informed and shared decision-making with your care team

Register to hear powerful myeloma patient and care partner stories

Diahanna Vallentine’s late husband was diagnosed with MGUS, often referred to as a precursor to multiple myeloma. As any care partner in this position, Diahanna’s research uncovered more questions than answers. When she sought clarity to these questions from her husband’s care team, she was met with outright hostility.

The doctor got in my face, six inches, yelling at me, and said, ‘You don’t have the right to ask questions, we’ll normally do this and you’ll find out about it later.’

Every story is different, but for many like Diahanna, the journey is riddled with disparities, including providers’ unconscious bias.

Register to discuss health inequities with noted myeloma experts

There is a critical need to raise awareness of the treatment gaps among minority populations living with multiple myeloma. How can myeloma patients get the best care no matter where they live when factors like age, geography, socioeconomic status, ethnicity, gender, and insurance type heavily influence the path to empowerment?

“Myeloma patients who are African-American and Hispanic typically get to the right treatment much later. In a lot of cases they may not get to the right treatment at all. We also know that the burden of cost of care is much higher for minority patients.”

 Dr. Sikander Ailawadhi

Meet the panel

Sikander Ailawadhi, MD

Professor of Medicine, Division of Hematology/Oncology

Mayo Clinic

Saad Z. Usmani, MD FACP

Chief, Plasma Cell Disorders Program Director, Clinical Research in Hematologic Malignancies 

Levine Cancer Institute / Atrium Health

Diahanna Vallentine

Myeloma Patient Advocate, Financial Coach

Myeloma Crowd

Jenny Ahlstrom

Founder

Myeloma Crowd

Rebecca Law

 

Host

Diverse Health Hub

Diverse Partners in Your Myeloma Care is brought to you by The Patient Empowerment Network. It is produced by Diverse Health Hub. We thank Janssen, Takeda, Genentech, AbbVie and Bristol-Myers Squibb for their support.

© 2020 Diverse Health Hub